Abraham, L., Arbuckle, R., Bonner, N., Crook, T., Humphrey, L., Mills, I., . . . Symonds, T. (2009). How do patients describe their symptoms of interstitial cystitis/painful bladder syndrome (IC/PBS)? Qualitative interviews with patients to support the development of a patient-reported symptom-based screener for IC/PBS. Value in Health, 12, A310.
Abraham, L., Arbuckle, R., Dennerstein, L., Humphrey, L., Maguire, L., Mirkin, S., . . . Walmsley, S. (2011). PIH39 How Do Postmenopausal Women Describe Breast Pain and Breakthrough Bleeding Associated with Hormonal Treatments for Menopausal Symptoms: Qualitative Interviews with Postmenopausal Women in the United States, China, Mexico and Italy. Value in Health, 14(7), A404.
Abraham, L., Humphrey, L., Arbuckle, R., Dennerstein, L., Simon, J. A., Mirkin, S., . . . Symonds, T. (2015). Qualitative cross-cultural exploration of breast symptoms and impacts associated with hormonal treatments for menopausal symptoms to inform the development of new patient-reported measurement tools. Maturitas, 80(3), 273-281. doi:10.1016/j.maturitas.2014.11.019
Arbuckle, R., Humphrey, L., Abraham, L., Dennerstein, L., Simon, J. A., Mirkin, S., . . . Symonds, T. (2014). Qualitative cross-cultural exploration of vaginal bleeding/spotting symptoms and impacts associated with hormone therapy in post-menopausal women to inform the development of new patient-reported measurement tools. Maturitas, 78(3), 219-227. doi:10.1016/j.maturitas.2014.04.019
Arbuckle, R. A., Humphrey, L., Vardeva, K., Arondekar, B., Danten-Viala, M., Scott, J. A., & Snoek, F. J. (2009). Psychometric evaluation of the Diabetes Symptom Checklist-Revised (DSC-R)—a measure of symptom distress. Value in Health, 12(8), 1168-1175.
Blackburn, S., Humphrey, L., Maguire, L., Deschasaux, C., & Stromberg, A. (2012). The Caregiver Burden Questionnaire for Chronic Heart Failure (CBQ-CHF): Development and Validation. Journal of Cardiac Failure, 18(8), S83.
Blackburn, S., Humphrey, L., Maguire, L., Deschaseaux, C., & Stromberg, A. (2012). PCV90 a novel conceptual model of caregiver burden in chronic heart failure: a qualitative study. Value in Health, 15(7), A378.
Blackburn, S., McCool, R., Panter, C., Young, V., Peterson, S., Mitchell, L., . . . Humphrey, L. (2013). Interviews with patients with chronic hepatitis C (CHC) virus infection document unmet needs, content validity, and comprehension of pros for clinical trials. Value in Health, 16(3), A6.
Burbridge, C., Symonds, T., Humphrey, L., Arbuckle, R., Hirsch, I., & Whelan, L. (2013). Evaluating Fatigue in Fibromyalgia: Development and Validation of the Daily Diary of Fatigue Symptoms in Fibromyalgia (DFS-Fibro). Value in Health, 16(7), A626.
Burbridge, C., Symonds, T., Humphrey, L., Arbuckle, R., Hirsch, I., & Whelan, L. (2013). Evaluating Fatigue in Fibromyalgia: Development and Validation of the Daily Diary of Fatigue Symptoms in Fibromyalgia (DFS-Fibro). Value in Health, 16(7), A626.
Burbridge, C., Symonds, T., Humphrey, L., Arbuckle, R., Hirsch, I., & Whelan, L. (2013, November 2-6). Evaluating Fatigue in Fibromyalgia: Development and Validation of the Daily Diary of Fatigue Symptoms in Fibromyalgia (DFS-Fibro). Paper presented at the ISPOR 16th Annual European Congress, Dublin, Ireland.
Burbridge, C., Symonds, T., Humphrey, L., Arbuckle, R., Hirsch, I., & Whelan, L. (2013). Validation of the daily diary of fatigue symptoms—fibromyalgia (DFS-Fibro). Open Journal of Rheumatology and Autoimmune Diseases, 3(02), 92-103. doi:10.4236/ojra.2013.32014
Campbell, A., Wiesner, C., Garcia, E., Tatlock, S., & Humphrey, L. (2012). PRM109 Content Validity of a Treatment Satisfaction Questionnaire in Non-Hodgkin's Lymphoma. Value in Health, 15(7), A480.
Evans, C., Humphrey, L., Pelletier, C., & Hudgens, S. (2017). Group Concept Mapping to Understand the Patient Perspective and Burden of Psoriasis. SKIN The Journal of Cutaneous Medicine, 1(3.1), s16.
Hall, R., Harald-Kongsø, J., Humphrey, L., & Willgoss, T. (2013). The Effect of Medical Devices with Dose-Memory and Reminder Functions on Patients’ Treatment Adherence, Confidence and Disease Self-management. Value in Health, 16(7), A336. doi:10.1016/j.jval.2013.08.082
Hall, R. L., Willgoss, T., Humphrey, L. J., & Kongsø, J. H. (2014). The effect of medical device dose-memory functions on patients’ adherence to treatment, confidence, and disease self-management. Patient preference and adherence, 8, 775.
Holloway, L., Humphrey, L., Heron, L., Pilling, C., Kitchen, H., Højbjerre, L., . . . Hansen, B. B. (2014). Patient-reported outcome measures for systemic lupus erythematosus clinical trials: a review of content validity, face validity and psychometric performance. Health and Quality of Life Outcomes, 12(1), 116.
Humphrey, L., Arbuckle, R., Mease, P., Williams, D. A., Samsoe, B. D., & Gilbert, C. (2010). Fatigue in fibromyalgia: a conceptual model informed by patient interviews. BMC Musculoskeletal Disorders, 11, 216. doi:10.1186/1471-2474-11-216
Humphrey, L., Arbuckle, R., Mease, P., Williams, D. A., Samsoe, B. D., & Gilbert, C. (2010). Fatigue in fibromyalgia: a conceptual model informed by patient interviews. BMC Musculoskeletal Disorders, 11(1), 216.
Humphrey, L., Arbuckle, R., Moldwin, R., Nordling, J., van de Merwe, J. P., Meunier, J., . . . Abraham, L. (2012). The bladder pain/interstitial cystitis symptom score: development, validation, and identification of a cut score. European Urology, 61(2), 271-279.
Humphrey, L., Arbuckle, R., Moldwin, R., Nordling, J., van de Merwe, J. P., Meunier, J., . . . Abraham, L. (2012). Reply from Authors re: Antonella Giannantoni. Patient-Reported Outcomes in Bladder Pain Syndrome: Qui Auget Dolorem, Auget et Scientiam (As Pain Increases, So Increases Knowledge). Eur Urol 2012; 61: 280–1. In: Elsevier.
Humphrey, L., Heron, L., Pilling, C., Holloway, L., Højbjerre, L., Strandberg-Larsen, M., & Hansen, B. (2013). Patient-reported outcome measures for systemic lupus erythematosus clinical trials: a content validity and psychometric performance review. Value in Health, 16(7), A600-A601.
Humphrey, L., Kulich, K., Deschaseaux, C., Blackburn, S., Maguire, L., & Strömberg, A. (2013). The caregiver Burden questionnaire for heart failure (CBQ-HF): face and content validity. Health and Quality of Life Outcomes, 11(1), 84.
Humphrey, L., Pelletier, C., Hudgens, S., & Evans, C. (2018). Group concept mapping to understand the burden of psoriasis. Journal of the American Academy of Dermatology, 79(3).
Humphrey, L., Randall, J. A., Hunter, T., Keith, S., Symonds, T., Abetz-Webb, L., . . . Naegeli, A. (2018). P007 A Qualitative Study of the Experience of adults and Adolescents with Ulcerative Colitis. Inflammatory Bowel Diseases, 24(suppl_1), S4-S4.
Humphrey, L., Symonds, T., Gable, J., Abetz-Webb, L., Silverberg, J., Griffiths, P., . . . DeLozier, A. (2017). Mixed methods evaluation of an itch numeric rating scale among adult and adolescent patients with atopic dermatitis. Value in Health, 20(9), A806.
Humphrey, L., Symonds, T., Gable, J., Abetz-Webb, L., Silverberg, J., Griffiths, P., . . . DeLozier, A. (2017). Validity and interpretation of a skin pain numeric rating scale among adults and adolescents with atopic dermatitis. Value in Health, 20(9), A806.
Humphrey, L., Vardeva, K., Arbuckle, R., Viala, M., Scott, J., & Snoek, F. (2007). PDB73 Psychometric Evaluation of the Diabetes Symptom Checklist-Revised (DSC-R): Face, Content and Construct Validity. Value in Health, 10(6), A277.
Humphrey, L., & Willgoss, T. (2014). Simultaneous item development (SID) for clinical outcomes assessments (COAs). Value in Health, 17(3), A207-A208.
Kim, Y. H., Bagot, M., Pinter-Brown, L., Rook, A. H., Porcu, P., Horwitz, S. M., . . . Investigators, M. (2018). Mogamulizumab versus vorinostat in previously treated cutaneous T-cell lymphoma (MAVORIC): an international, open-label, randomised, controlled phase 3 trial. Lancet Oncology, 19(9), 1192-1204. doi:10.1016/S1470-2045(18)30379-6
Mease, P., Humphrey, L., Arbuckle, R., Williams, D., Danneskiold-Samsoe, B., & Gilbert, C. (2009). PR3 Fibromyalgia Fatigue—Development of a Conceptual Model Based on Qualitative Patient Interviews. Value in Health, 12(7), A232.
Mease, P., Humphrey, L., Arbuckle, R., Williams, D. A., Danneskiold-Samsoe, B., & Gilbert, C. (2009). Fibromyalgia fatigue – development of a conceptual model based on qualitative patient interviews. Value in Health, 12(7), A232.
Mease, P., Humphrey, L., Arbuckle, R., Williams, D. A., Danneskiold-Samsoe, B., & Gilbert, C. (2009, October 23-26). Fibromyalgia fatigue – development of a conceptual model based on qualitative patient interviews. Paper presented at the ISPOR 12th Annual European Congress, Paris, France.
Mease, P. J., Arnold, L. M., Crofford, L. J., Williams, D. A., Russell, I. J., Humphrey, L., . . . Martin, S. A. (2008). Identifying the clinical domains of fibromyalgia: contributions from clinician and patient Delphi exercises. Arthritis Care & Research: Official Journal of the American College of Rheumatology, 59(7), 952-960.
Nguyen, A. M., Humphrey, L., Kitchen, H., Rehman, T., & Norquist, J. M. (2015). A qualitative study to develop a patient-reported outcome for dysmenorrhea. Quality of Life Research, 24(1), 181-191.
Randall, J., Guobyte, A., Hunter, T., Humphrey, L., Symonds, T., Delbecque, L., & Naegeli, A. (2019). PGI53 A Qualitative Study Exploring the Burden of Ulcerative Colitis Among Child, Adolescent, and Adult Patients. Value in Health, 22, S625-S626.
Teal, S., Brohan, E., Hettema, Y., Humphrey, L., Willgoss, T., Hudgens, S., . . . Cappelleri, J. (2013). Item Refinement and Psychometric Testing of a Novel Survey for Evaluating Patient Perception and Preference for Haemophilia a Treatment. Value in Health, 16(7), A597.
Teal, S., Brohan, E., Hettema, Y., Humphrey, L., Willgoss, T., Hudgens, S., . . . Cappelleri, J. C. (2014). Development and psychometric evaluation of a novel tool for assessing patient perception and preference for haemophilia treatment (HaemoPREF). Haemophilia, 20(5), 666-673. doi:10.1111/hae.12432
Theodore-Oklota, C., Humphrey, L., Wiesner, C., Schnetzler, G., Hudgens, S., & Campbell, A. (2016). Validation of a treatment satisfaction questionnaire in non-Hodgkin lymphoma: assessing the change from intravenous to subcutaneous administration of rituximab. Patient Prefer Adherence, 10, 1767-1776. doi:10.2147/PPA.S108489
Willgoss, T., Humphrey, L., & Blankenburg, M. (2014). “I Don't Know How It Happened Or When Everything Changed. It's Like I Blinked and All of A Sudden, I Didn't Recognise My Own Body”: Using Qualitative Insights To Develop A Conceptual Model To Understand the Lived Experience of Patients With Systemic Sclerosis. Value in Health, 17(7), A535.
Willgoss, T., Humphrey, L., Fatoye, F., & Yohannes, A. (2014). The Anxiety Inventory for Respiratory Disease (Air): an Exploration of the Air's Psychometric Properties Through Rasch Analysis. Value in Health, 17(7), A461-A462.
Willgoss, T., Humphrey, L., Fatoye, F., & Yohannes, A. (2014). Conceptual Comprehensiveness of Anxiety Instruments in Chronic Obstructive Pulmonary Disease: Exploring the Potential for Confounding Somatic Items. Value in Health, 17(7), A461.
Willgoss, T., Humphrey, L., Symonds, T., & Cappelleri, J. (2014). Mixed methods for the development of clincial outcome assessments (COAs): Exploring further possibilities for mixed data collection and analysis. Value in Health, 17(3), A207.
Hudgens, S., Pelletier, C., Newton, L., Howerter, A., Gaines, J., Keith, S., . . . Evans, C. (2019). PSS23 Disease Burden in Patients with Mild Psoriasis: Group Concept Mapping. Value in Health, 22, S890.
Hudgens, S., Phillips-Beyer, A., Newton, L., Kinter, D., & Benes, H. (2020). Development and validation of the Insomnia Daytime Symptoms and Impacts Questionnaire (IDSIQ). Patient, Nov 1, doi: 10.1007/s40271-40020-00474-z.
Newton, D., England, M., Doll, H., & Gardner, B. P. (2011). The case for early treatment of dislocations of the cervical spine with cord involvement sustained playing rugby. Journal of Bone and Joint Surgery (British Volume), 93(12), 1646-1652. doi:10.1302/0301-620X.93B12.27048
Newton, L., DeLozier, A. M., Griffiths, P. C., Hill, J. N., Hudgens, S., Symonds, T., . . . Silverberg, J. I. (2019). Exploring content and psychometric validity of newly developed assessment tools for itch and skin pain in atopic dermatitis. Journal of patient-reported outcomes, 3(1), 42. doi:10.1186/s41687-019-0128-z
Newton, L., Knight-West, O., Eremenco, S., Hudgens, S., Crescioni, M., Symonds, T., . . . Vallow, S. (2018). Comparability of a Provisioned Device Versus Bring Your Own Device for Completion of Patient-Reported Outcome (PRO) Measures by Participants with Chronic Obstructive Pulmonary Disease (COPD): Qualitative Interview Findings. Value in Health, 21, S418-S418.
Newton, L., Randall, J. A., Hunter, T., Keith, S., Symonds, T., Komocsar, W., . . . Naegeli, A. (2018, October). A Qualitative Study into the Experience of Adolescents and Adults with Ulcerative Colitis. Paper presented at the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition Annual Conference, Hollywood, FL.
Newton, L., Randall, J. A., Hunter, T., Keith, S., Symonds, T., Secrest, R. J., . . . Naegeli, A. (2018, June 2-5). A Qualitative Study into the Experience of Adults and Adolescents with Ulcerative Colitis. Paper presented at the Digestive Disease Week Annual Meeting, Washington, DC, US.
Newton, L., Randall, J. A., Hunter, T., Keith, S., Symonds, T., Secrest, R. J., . . . Naegeli, A. (2018, January). A Qualitative Study into the Experience of Adults and Adolescents with Ulcerative Colitis. Paper presented at the Chron's and Colitis Foundation Congress 2018, Las Vegas, Nevada, US.
Newton, L., Randall, J. A., Hunter, T., Keith, S., Symonds, T., Secrest, R. J., . . . Naegeli, A. N. (2019). A qualitative study exploring the health-related quality of life and symptomatic experiences of adults and adolescents with ulcerative colitis. Journal of patient-reported outcomes, 3(1), 66. doi:10.1186/s41687-019-0154-x
Randall, J., Codispoti, N., Gibble, T., Newton, L., & Naegeli, A. (2018). PRM170-Utilizing patient collages in qualitative interviews to facilitate data collection in patents diagnosed with ulcerative colitis. Value in Health, 21, S385.
Randall, J. A., Codispoti, N., Gibble, T. H., Newton, L., & Naegeli, A. N. (2018, November 13). Utilizing Patient Collages in Qualitative Interviews to Facilitate Data in Patients Diagnosed with Ulcerative Colitis. Paper presented at the ISPOR 21st Annual European Congress, Barcelona, Spain.
Randall, J. A., Guobyte, A., Delbecque, L., Newton, L., Symonds, T., & Hunter, T. (2019, October 25-30). Ulcerative Colitis Experiences Among a Pediatric Population: A Qualitative Study Reviewing the Agreement of Symptoms Discussed by Children and Their Parents. Paper presented at the American College of Gastroenterology, San Antonio, Texas.
Randall, J. A., Guobyte, A., Hunter, T., Newton, L., Symonds, T., & Delbecque, L. (2019, October 17-19). Ulcerative Colitis Experiences Among Children: Findings from a Qualitative Study with Children and Parents. Paper presented at the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) Annual Meeting, Chicago, Illinois, USA.
Randall, J. A., Guobyte, A., Hunter, T., Newton, L., Symonds, T., Delbecque, L., & Naegeli, A. (2019, November 2-6). A Qualitative Study Exploring the Burden of Ulcerative Colitis Among Child, Adolescent, and Adult Patients. Paper presented at the ISPOR 22nd Annual European Congress, Copenhagen, Denmark.