Listen to Claire Burbridge speaking about a study to understand the impact of NPD on patients and their families during the session entitled: Improving Outcomes in Niemann-Pick Disease, Global initiatives to further the understanding of patient experience, improve time to diagnosis and support therapeutic research.
This sessions is from the NPUK's 1st Digital Annual Family Conference & Interactive Workshop on Niemann-Pick Diseases and is now on-demand here: https://www.workcast.com/?pak=7407686361131830
